Living with ALS

Many people diagnosed with Amyotrophic lateral sclerosis, ALS, use eye control to communicate once they have lost control over their voice and limbs. Often, they are interested in getting their story out and in doing anything they can to help others in their situation to continue participating in, and contributing during their lives.

We want to help them get their voices heard. Some of these amazing people are still around. Others have passed away. And though they all are (or were) unique in their goals and individual in their personalities, the one thing they have in common is that they want their story to live on. They want to be remembered.

Our thoughts and best wishes go out to all those who are still around, while we keep the memory of those we have lost close to our hearts.

These are their stories.

	Jorg Communicating personal emotions and thoughts are essential to being human. For Jorg the electronic voice in his MyTobii is as necessary an assistive tool as his wheelchair is. Read Jorg's story
	Birgit It is impossible to describe how it feels to once again be able to talk with my husband and 20-year-old son—it has made a huge improvement to my quality of life. Read Birgit's story
	Scott Eye control has brought Scott back up to speed in his communication, something that means a great deal to him. Read Scott's story